PCOS isn’t a real disease, it’s made up by fat women.

Susanne writes:

From 1999-2001 I was suddenly health insured again and although I was living about 150 mi away from the specialists I eventually needed to see, I decided to have a thorough checkup. I am significantly overweight and qualify as morbidly obese; strangely, most doctors observe, I don’t seem to have the expected health problems from it, but for various reasons I wouldn’t mind losing about half of my body weight, which would still make me overweight, but not as much. I’d like to be able to buy clothing in a local clothing store, and I guess I admit I’d like people not to stare at me on the street. Three different diets didn’t help much (20 pounds off), and the exercise typically recommended for people in my situation didn’t seem to impact me much, either. The results of that push to get treated were, after many trips back and forth, a doctor supervised diet and exercise plan, a lot of tests, a few procedures, a preliminary diagnosis of PCOS. Just as I was ready to start treatment for that, I had to change jobs and move about 1,000 miles away to a different city. When I changed jobs, I had a six month exclusion of treatment on my new policy for anything that was a pre-existing condition. After the six months were over, I went to a gynecological practice that was recommended univocally by a number of my new female colleagues. I was lucky enough to have doctors in the first city who gave me a copy of all the test results and treatment attempts, and I took this file of paper along with me expecting to pick up where I had left off. I have never been so humiliated. A robe that covered a third of my body, a nurse who addressed me by my first name in a town and culture where the usual form of address is Ms or Mrs., insulted me by telling me straight out that my stomach is disgusting, and then read my blood pressure four times because she didn’t believe anyone at my weight could have a bp of 120/90, and a gynecologist who took one look at me, and even before doing the basic gynecological check, started a checklist of new procedures she wished to perform on me because something was wrong (as I stated that I had irregular, weird periods). “I am going to give a prescription to start your period immediately, you should probably go on birth control, you will have to have an immediate biopsy, and let’s see, we’ll start with thyroid”…and my reply was “actually, I have been through a lot of this already, my most recent result for thyroid problems was negative” and she said “how do you know that?” and I pulled out my folder of two years of testing. I said, “you may want to look at these. My last doctor had just arrived at a diagnosis of PCOS when I had to move.” The reply? “PCOS isn’t a real disease, it’s been made up by fat women.” I said, “I just had a biopsy about eight months ago,” and she said, “we can’t trust the results of those tests. If they told you you have PCOS they are quacks and are not interpreting the results correctly. You need to do what I say.” I said, “you know, I am not three years old. I have been reading medical materials since this diagnosis showed up on the horizon, and I think PCOS is a pretty well accepted phenomenon, you can question whether I have it, but I don’t think you can question whether there is such a thing as PCOS” and she said, “why are you reading medical materials? You can’t possible understand them,” and I said, “I have a Ph.D. I may not understand everything, but I am capable of understanding a lot” and she said, “well, you are NOT a doctor.” Realizing we weren’t going anywhere, I said, “can we complete the physical exam?” There was some issue with how the speculum was angled (she didn’t seem very experienced in performing the procedure) and she said, “stop bearing down!” and I said, “I am not bearing down” and she said, “well, who would have thought your vaginal muscles would be so strong. You can’t be having much sex.” (Note: I had indicated on the form that I am sexually active with my partner. I guess she didn’t believe anyone as disgusting as me could be telling the truth.) I thought this wasbeyond the pale and I said, “would you please complete the exam?” I left the office shaking.

Two days later the practice nurse called back to schedule all of the tests that this doctor had ordered. I said, “I will not be scheduling tests with your practice, after my insulting experiences in your practice, I am not sure that you or the doctor is competent” and she said, “you just can’t stand it that someone is finally telling you the truth about your weight.” And I said, “no one knows the truth about my weight better than me. I am the one who lives in my body, thank you very much.”

Thank you to the doctors in the first city who didn’t assume I was just a lazy pig. I stood up for myself with this new practice, but I doubt it had any effect on them. And I haven’t been to a doctor since then. I wish I could get the courage to find another gynecologist, but I can’t risk this kind of treatment again. It made me feel suicidal for weeks. I am pretty sure I had cyst rupture last week. I know I should find a new doctor. But I am at a crucial point in my work and I can’t risk the emotional disequilibrium. I am shaking just writing this.

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38 Comments

  1. Charlotte

     /  June 16, 2009

    This makes me so angry.
    I cannot believe how rude and insulting that doctor and nurse were to you; the things they said to you and the way you were treated is not just unprofessional; it was downright cruel.
    What really go me was when the doctor said “PCOS is a disease made up by fat women” invalidating someone’s medical condition/diagnosis is one of the cruelest things a doctor can do.
    I am so sorry that happened to you.

    Reply
    • So true !

      Unfortunately, when doctors are so stuck in their bigotry, they start by questioning/ invalidating the reality of the diagnosis.

      I had such a problem many times because I suffer from ADHD. Jerk did not hesitate to bring on the table that “ADHD is only a diagnosis made by doctors who want to turn their patients as junkies” or “ADHD has been invented to allow parents to dismiss themselves from their parental responsibilities : CPS would had never ever allowed such a failure to happen”.

      Unfortunately, being thin/of average weight does not make you immune from such comments. Very sad.

      Reply
  2. shoutz

     /  June 16, 2009

    Let me immediately say, as a woman who has PCOS, that there are plenty of well-educated, well-informed doctors out there who believe that PCOS really exists. I do believe it was not commonly diagnosed at first – or, at least, was not commonly discussed as a diagnosis because many of us blamed ourselves for our irregular periods and other complaints, and didn’t actively pursue medical care to find out otherwise.

    I’m so, so sorry about how you were treated. It’s reprehensible to treat anyone that way, particularly in a medical environment. But just because they were unkind, please don’t let this affect your health. Ask overweight friends who they recommend… or perhaps an overweight GP… they might be able to help. I tried to change doctors recently and essentially threw myself on the mercy of the scheduler by telling her I was a fat woman who didn’t want to be hassled about that, who in her office would she recommend for me. While the doctor turned out not to be a good fit for me, it wasn’t because of weight issues. That may work for you. Please take care of yourself.

    Reply
  3. Good for you for not going back.
    Good for you for not scheduling the tests.

    **hugs**

    Reply
  4. Possibly because I have PCOS, I found this particularly appareling. I am so so sorry that happened to you, and I wouldn’t want to see a doctor ever again, either.

    Reply
  5. Kate

     /  June 16, 2009

    That is horrible! Have you considered filing a formal complaint against the practice or just calling it out (you could link to this story) on ratings sites like Google, Yelp etc? (If you look up a business using Google there is usually a way to submit a rating and comment that will then show up in subsequent searches.) It might help protect others from the same unjustifiable treatment. Good luck and I hope you feel strong enough to seek compassionate care soon–you have a right to it.

    Reply
  6. Nazira Bashour

     /  June 16, 2009

    oh my god I am so sorry that had to happen to you!-to go to a doctor with a very real medical condition and be told you are lying. I dont know if commenting extremely angry is the best thing ever but GRRRR! You and every other woman on the planet deserve to be treated with dignity and respect. I hate when people assume one is lying about something because of their weight. I went to a nutritionist a while back (im now as recovered as I think I’ll ever be) trying to recover from anorexia and all she would talk about was how many calories a day I could eat and still lose weight. I remember thinking you bitch, um, like 500! (or less or none) I didn’t stand up for myself like you (kudos) but I was inwardly shaking with hate and rage. Sorry I got off topic. But I had previously started eating every day at least two meals (as hard as it was) and had gone from border of “underweight” to “healthy weight”(BMI) and she thought I needed to lose weight. I shudder to think how she talked to “overweight” clients. OK my rant i over and I wish you the best.

    Reply
  7. she said, “well, who would have thought your vaginal muscles would be so strong. You can’t be having much sex.

    I am stunned at your whole story, but the fact that a doctor could say this to you while you were naked and her hands were inside you is just unfathomable. I am so sorry you went through that, and I second the suggestion that you file a formal complaint.

    Reply
  8. Isn’t a real disease?

    ISN’T A REAL DISEASE?

    **sputterfumegargh**

    If it had been me, I’d be asking her how it is this “fake disease” got its own ICD-9 code. We fat chicks aren’t THAT powerful.

    Reply
  9. Elizabeth

     /  June 16, 2009

    What a horrible experience…I’m really sorry it happened to you.

    I took a long time for me to learn this, but it has been really helpful to me to remember that I can walk out of a (non-emergency) medical situation at ANY time, for any reason I want to. It’s hard to just get up, put your clothes on and walk out the door (possibly losing money for nothing), but it has been my repeated experience that doctors who say crappy things really, really, really need to stay away from my body. (And that goes for nurses and other staff, too. Caring, competent doctors rarely have total assholes for employees.)

    And it’s my right to keep them away, through whatever action I need to take.

    Reply
  10. Anna

     /  June 16, 2009

    Dear God, that is INSANE.

    You are incredible. You are self assured and confident. I don’t think I would have had the guts to stand up to someone so ignorant and horrible.

    Reply
  11. Hi.
    Thank you for bravely sharing your story. I’m working up the bravery to post my own, soon.
    If there is anyone you can ask for help in finding a fat friendly provider (not even necessarily a gyn) to go to, please ask them to locate someone for you. If you want to email me through my web site, I can see if I can locate someone in your area.
    If any of my doctors heard your story, I know they would see you and do whatever they could to help. Great doctors, unbiased, compassionate doctors like the ones who did your initial tests do exist, and you can find another one. I can imagine it must be really hard to find a new one, but your health is entirely worth it.

    Reply
  12. I am completely disgusted by the experience you had to endure. I am so sorry. I have a few of my own stories, too.

    The PCOS support.org site has a listing of doctors. If you happen to live in south Florida, I know some good doctors as well. Please don’t let that experience continue to jeopardize your health…not only did the doctor not provide you the care you have a right to, and deserve, at that time, it’s impacted your future health because you won’t go to a doctor. Don’t let her do that to you!!

    Reply
  13. MargB

     /  June 17, 2009

    I am so angry at your doctor and can’t even begin to imagine how you feel. I would DEFINITELY file a formal complaint. PCOS is a very real and widely recognised condition.

    I wish you were in Melbourne, Australia; our local women’s hospital has the best program ever for women with PCOS called the Big Girls Group. It’s a group support program that focuses on personal development and emotional health, as well as appropriate non-judgemental diet/exercise, because many women with PCOS have developed very low self-esteem due to how society treats people with this condition (I wonder why…) Even though most of us are still very Big Girls we got so much out of the program and are a lot more confident and healthy than previously. Maybe see if any of the women’s hospitals or university hospitals near you have a similar program (it might be aligned with the reproductive health services).

    Reply
    • “how society treats people with this condition (I wonder why…”
      Except about obesity, the influence of physical appearance on medical care has hardly been studied.
      It includes how doctors treat people.

      But I read “The beauty bias”, and the link between beauty and receiving medical care has been linked : people considered as “beautiful” have better chances to receive good medical care (lesser risks to be misdiagnosed, more time spent with the physician….). It was only a line though, and I didn’t manage to grab the study about it.
      Okay, I don’t know if the other barriers have been controlled (insurence, socio-economic status….), but it is still a piece of info despite the studies’s limitations.

      If we look at “appearance and employment”, we can see that people considered as beautiful have better odds to be hired, are more paid and are advantaged to be promoted.

      Logically, it makes sense that people considered as “beautiful” have greater chances to receive good medical treatment if they have better odds for being hired, being better paid, being advantaged to receive a promotion…. !!
      I didn’t say “it is good” or “morally right”, I said that it makes sense from a sociological point of view.

      Even thin people who are considered as “unattractive” by the physician can be denied medical care.
      My sicko psychiatrist considered that I was anorexic, therefore she tried to persuade herself and persuade me about such a diagnosis because she considered me as unattractive (I didn’t buy into such a diagnosis), so an easy way out for forcing me to buy into her BS. She didn’t accept that as unattractive and with only my Bac (French diploma who qualifies you to go to university), I can be capable to understand and to know myself.

      Unfortunately, it looks like the more attractive the patient is for the physician, the more the physician will listen to the patient and be eager to spend time with the patient (by educating him about his health and such).
      I repeat myself, even thin people are not immune of being considered as “unattractive”, therefore “not receiving medical care”. The insurance problem was a non issue as our health system is State funded, and we can choose our physician no matter how far he is. On the top of that, my sicko psychiatrist works at hospital, so she is a State dependant.
      What I am more and more convinced is that she denied me quality medical care because she considered me as unattractive and useless for society. I am blunt, but it is a very strong conviction now and it gets stronger day after day.

      PCOS brings unesthetic features as symptoms (a fat woman with hair all over the body is not considered as “beautiful” by other people, society, employers, doctors…..).
      Unfortunately, doctors are very reluctant to treat unattractive patients, and society is quick to judge only by appearance😦

      Reply
  14. Robz

     /  June 17, 2009

    What a nightmare!

    I’d like to think that I would be as brave as you were under this kind of treatment but I highly doubt that I would be.

    I can understand why you would feel like not seeing anyone else after that. I hope you can though, you shouldn’t be suffering because of that disgusting malpractice.

    I also support the idea of a formal complaint so that these people don’t continue to terrorise fat women. If she is refusing to agknowledge PCOS then she has probably misdiagnosed many patients before.

    Reply
  15. I’ve been told almost my entire life (once puberty hit like a truck) that I just needed to eat less and exercise more. When I broached the idea that I had PCOS it was dismissed out of hand. I didn’t argue it too much until recently, because some pretty big indicators of PCOS (blood sugar, blood pressure, and cholesterol) were all normal. Then I got pregnant and my entire body and metabolism changed. I mentioned to the APN I was seeing that I wanted to get screened for PCOS after I gave birth.

    I’ve been on metformin for a little over ten weeks and have consistently been losing 2 pounds a week. My skin is no longer crazy oily, and I don’t have to wash my hair every 12 hours to keep it clean. My acne has settled down. I… really don’t think this is in my head or the result of making up an illness.

    I know it’s scary, but please try to find a doctor you trust for follow up care. From my research, when PCOS is untreated it can lead to diabetes and heart disease. You’re smart and have done research on your own; you’ve probably seen the same.

    One thing I’ve noticed about doctor offices is that if they have larger sized gowns and blood pressure cuffs on hand they tend not to be jerks about fat issues. This might not be true across the board, but I’ve noticed far better treatment at places that had these things readily available instead of buried in a drawer, “in another room,” or lacking entirely. Maybe that’s something you could keep an eye out for or ask about at your next doctor’s visit.

    I’m sorry you had such a terrible experience, but I’m very glad that you stood up for yourself and didn’t permit that doctor to bully you. I hope you can get quality medical care.

    Reply
  16. CL

     /  June 17, 2009

    What a horrible story — I’m so sorry you were treated that way.

    I have PCOS, and have been treated for it for years. Once I moved to a new city I saw a new doctor, and she told me I don’t really have PCOS — she was very dismissive of my symptoms. When my glucose tolerance came back indicating that I am insulin resistant, she accused me of eating tons of candy.

    I said I never eat candy, but said honestly that I do eat ice cream. She said “no that wouldn’t cause this” — it must be candy. Finally, she said it must be a lab error because I’m not fat.

    She made me feel like I’m stupid and like I was wasting her time, so I never went back and when my prescriptions ran out, my symptoms came back bad… so I’m not getting treated at all right now. PCOS seems to bring out the stupid in doctors… the symptoms are different for everyone, and it affects all types of women, and doctors need to understand that.

    Reply
  17. Annie

     /  June 17, 2009

    Oh my goodness! That’s terrible. I see a wonderful endocrinologist for my PCOS (after my GYN turned out to be fatphobic and also not a very good doctor.) If you’re in the Washington, DC area her name is Dr. Jean Kim. (I’m new to this site, I hope it’s okay to say this in the comments.)

    Reply
  18. Piffle

     /  June 17, 2009

    http://mayoclinic.com/health/polycystic-ovary-syndrome/DS00423

    Well, the Mayo Clinic says it is a common condition; so pah on that doctor. Good for you, not going back to her. I hope you find someone competent.

    That comment about sex is so biased and ugly. Gah.

    Reply
  19. Oh my god I can’t believe anyone treated you this horribly. I’m glad you told them off. I also wonder if there is some sort of official organization with which you can file a complaint? Some sort of medical board? And I would particularly stress the WAY they spoke to you, saying your stomach is disgusting or things like that – which are not a matter of medical opinion, and are completely uncalled for and inappropriate.

    I am terribly sorry you’ve felt too afraid to go to another doctor… Perhaps there is someone that can recommend one to you?

    I do want to say, as I have also been told at times in my life that I may have polycystic ovaries – I’ve also been told that PCOS is not really a useful term and is not so really used anymore. I know that’s just me, and the two doctors who have seen me. They are very prominent in the field but I still don’t think that invalidates all of the rest of your experiences, all the people here who replied… I’m just sharing mine as well.

    The REASON my doctors said it wasn’t really relevant, if I understood correctly, is: a “syndrome” is just a collection of symptoms that often occur together. So it’s like, so what? All the symptoms I know of are things that you should check out and keep an eye on in general when getting checkups. I don’t think labeling it PCOS will cause us to check for things we wouldn’t otherwise check for, esp if the cysts are already being observed… the rest of it is just your normal bloodwork that we should be getting done anyway, no?
    I don’t really see the importance of labeling someone who has a few of these symptoms. Not to mention that the threshold for diagnosing PCOS is different for different doctors… How many symptoms does it take to say you have it? How many freckles do you have to have on your face to be considered gingerfaced? It’s subjective. And it seems irrelevant to me, like it’s just semantics. It’s not a binary thing, where you have it or you don’t. And it’s not a unique specific indicator, like blood pressure or cholesterol are specific things. So, I mean, if a doctor had respectfully told you THAT, like my doctor, then I’m sure you might agree or disagree but it wouldn’t matter as long as they are treating whatever problems you have. (Or you could even ask for a second opinion, whatever.) It’s just that what these doctors/nurses said to you is RIDICULOUS, the WAY they spoke to you, and I’m so sorry you had to go through that.

    Reply
  20. AllThingsToNoOne

     /  June 17, 2009

    That is horrible. I\’m really sorry. 😦

    Reply
  21. KellyK

     /  June 17, 2009

    The way that doctor treated you was beyond the pale. Past unprofessional, through rude, and right on into hateful. I seriously encourage you to file a complaint and include your story on any web directory you can find that allows people to review services. (Google and Yahoo Local come to mind; there might be others that cover your local area.)

    Also, I hope you do go back to a doctor to get treatment. I know it’s hard, and I’m really sorry that it is. In addition to using the resources other people have suggested to find a good doctor, is there anyone you can take with you. Just having a good friend or family member to talk with in the car, to sit in the waiting room with you, and to remind you that if the doctor or nurse is rude to you, even once, you can walk out. Maybe that would help some.

    Reply
  22. I hate to burst all of your bubbles, but it has been my experience that filing a formal complaint does no good if your health was not physically harmed. The only thing that gets anyone’s attention (including the medical board) is filing a lawsuit and once again, if you don’t have any lasting harm (they exclude the immense emotional harm all of these idiots do to their patients) then your lawsuit won’t go anywhere and you’d be out money for the lawyer. Sorry to be such a downer, but in my experience that’s the truth. I’ve suffered similar abuse by doctors, but one in particular was as nasty as the one in Susanne’s story. And I reported her…and she didn’t even get reprimanded by the medical board.

    Reply
  23. Oh, and if that Dr. had just truthfully apologized for her behavior, I’d have forgiven and forgotten and still moved on to a doctor who actually listened instead of invalidating, what turned out to be a life-threatening condition caused by a medication she prescribed.

    Reply
  24. catgal

     /  June 17, 2009

    I am soooo sorry this happened to you! I have typed and deleted about 4 different forms of advice, but to tell you the truth, you shouldn’t have to do anything “special” when making appointments or seeing a new doctor.

    The one thing I can tell you that I used to have my own hospital gown that I brought with me to doctors offices because the robes NEVER fit. I got it from the internet. Don’t remember where, but I am sure Google can help. I also do this with SPA robes. Bring my own do that I know I will be properly covered.

    Please find another doctor quickly. Don’t give up!

    Reply
  25. I just wanted to say that my doctor has always told me that she believes that PCOS can cause obesity, not the other way around.

    Doctors like the one you just described should lose their license for treating their patients like that.

    Reply
  26. LadyGrey

     /  June 18, 2009

    So many of her comments were completely unprofessional, but making comments about the strength of your vaginal muscles, and how often you’re having sex? That’s in a whole ‘nother class of wrong. That’s sexually harrassing, and something a medical board might take more seriously.

    Reply
  27. lucywatchthesky

     /  June 18, 2009

    Hearing a story like this absolutely disgusts me. No one should ever, EVER be afraid to go to the doctor, especially when they suspect they have something seriously wrong with them that’s causing them anxiety and pain, because they fear dehumanizing treatment such as you received from that practice. Furthermore, it makes me wonder why doctors are given no training on body acceptance, or any kind of therapy, or anything that would promote a lot more sensitivity towards ALL their patients. If therapists-in-training have to do it, why shouldn’t doctors? I hope you can find the strength to go to another doctor as soon as possible, and I hope that the next one will actually be able to give you the second opinion you need without judgment.

    Reply
  28. jannedoe

     /  June 25, 2009

    A fat chick’s disease?! Then why, pray tell, did my gyno diagnose me with PCOS when I was but a mere 98 lbs? Maybe it was the 22 ovarian cysts he found in the ultrasound that tipped him off…

    Good for you for calling that quack on her b/s!

    Reply
  29. Try to find a younger doctor who is just out of residency, they are more prone to accepting the “new” syndromes, diseases, and etc. I was recently diagnosed myself and suffer from everything that you are saying. And honestly, it was my first time ever going to a gyno @ age 23. I was terrified but I told him my issues and he looked and he ordered an ultrasound for the very next week and as soon as the u/s was done he reviewed the pics and knew immediately that we needed to talk. I am overweight – more than that… I’m 294lbs. He also stated that I needed to talk to my primary care dr. about getting my cholesterol tested because he feared that I have Metabollic Syndrome, also known as Syndrome X — which is basically insulin resistance. It makes me feel like, it wasn’t just me that was making me gain 150 lbs in 3 years! It was that the thyroid condition, PCOS, and the Syndrome X all playing ball together — making my body go CRAZY!!

    Sorry to blah blah for a minute I just needed to express what I’ve been feeling. I TRULY hope that you get help from a great doctor! I tell you, it makes me feel 100% better knowing what is really going on with my body and that somebody else understands how I’ve been feeling!!

    Reply
  30. The level of sheer “what the everliving blue fuck” to this defy description. PCOS is a medically accepted, scientifically researched, consensus backed condition. Anyone parroting bullshit about how it’s made up, especially made up “by fat women” is a bigoted, psuedoscience peddling piece of wire chewing excrement.

    I am so sorry you went through that. Those people should lose their practice. That was utterly abhorrent of them.

    One of the things you can do to check into gynecologists without exposing yourself to further attacks is to get a friend who you can reasonably trust to be size/shape positive to inquire for you and to specifically ask about how they handle larger folk. If they’re reasonably good at reading people’s reactions over the phone, they can track voice changes and other indicators of lying (in case they’re subtly bigoted). And if the office itself is obviously bigoted regarding size and shape, that should be readily apparent in what they say.

    Then they can report back to you on whether a particular office is worth looking into or not, sparing you from the emotional damage.

    Reply
  31. harriet

     /  October 21, 2009

    Only just discovered this post so sorry I’m late to the party! I’m from the UK so not sure how things work with your health system but this doctor sounds terrible! The “you’re not a doctor” line cracked me up though – does she not know what a PhD is?! I know she probably meant MD but even so…

    Also, how can she say PCOS is “made-up” when just a quick google search will show lots of reputable people recognise it, including the NHS.

    I hope you manage to find a much better doctor.

    Reply
  32. I hope you’re telling your friends to stay away from this doctor! I have never heard of such unprofessionalism from ALL of the staff. It’s absolutely ridiculous.

    I’m amazed you handled it so well, I would’ve lost it right there.

    Reply
  33. monique

     /  November 3, 2009

    this is so enraging. it’s shameful that someone who is supposed to be in the health care system can be such an outright bitch.

    you definitely kept your cool and handled the situation really good. if that was me, I would’ve knocked that woman on her ass with a hook to her jaw.

    Reply
  34. veva

     /  September 13, 2012

    That doctor does sound incompetent. I would lodge a formal complaint–maybe with the AMA? Board of Health? There must be a way of calling her out on the carpet for such behavior.

    Reply
  35. Actually even though doctors say they don’t know where it actually comes from I found out not that long ago my mom had to change my diaper more the usual. i was little then about 9 to 10 months when mom noticed a smell and infection all the doc said was it’s a yeast infection/urinary .used cream that didn’t work she got scared because i had a strong smell at such a young age. and had to go to doc a least 2 times a week so if this is true then it is in are genes maybe i should right the health board and tell them about what happen to me when i was a baby ..i am German Scottish and cherokee irish.so somewhere around those genes it was passed down,,it’s dreadfull when i have to shave!! well feels like everyday ..facial hair its getting almost unbearable i pray ..maybe someone sees this and thanks before they speak about peoples weight something’s we can’t help..God Bless Ladies

    Reply
  36. Ever since I was 12, I knew something was wrong ‘down there’, my monthlies were all over the place (I started when I was 9), sometimes they’d appear once a year, sometimes 5 times a month, my moods were constantly all over the place, I was developing quite a bit of hair (thick dark hair too!) in all the wrong places, I look like a friggin yeti in a bikini… something wasn’t quite right. I researched like crazy, did tests at home to discover, yep, hormones are all over the place and eventually came to the conclusion, PCOS is the cause.

    I spent 16 years battling doctor after doctor. Apparently, out of all the doctors I had seen, not a single one had read any of my blood tests properly, tests that indicated PCOS.
    I tried putting my foot down, nada. I literally had to go suicidal/murderous intent to get anyone to push the laparoscopy that would confirm PCOS, eventually they buckled and did the test.
    When I woke up, all I got told was “I’m so sorry, but both sides are infested with cysts… this explains your blood test results. I will forward this information to your GP” – Result! At least now I’ll get the medication I need to sort out my massive hormonal imbalance… wrong.
    I’m now 30, still fighting to get the right medication – Birth Control does sort out the ‘routine’, but doesn’t touch any of the other side effects of this condition, I’ve also found that birth control increases the likely-hood of bladder infections.. weeeeeeee.
    Quite a few times I’ve heard the phrase “Your not a doctor” or “web research is a load of bull”. I’m not ‘overweight’ (I was actually underweight as a kid), god help me, if a doctor said it was because I was overweight I would have thumped him/her so hard, can’t help it you see, I have a hormone condition that makes me angry all the time. >:|

    I have recently learnt I can go around my doctors and order the tests myself if I have evidence to validate those tests, feel like I should be the one with a PHD.

    Pishes me off, out of 20+ doctors, only 2 have actually got some brains between their ears. Most doctors in the UK are fob-off pencil pushers, see them all the time QQ’ing in the newpapers “We need more paycheck”, “Were working too hard”, if they did their job right, maybe I wouldn’t have had to pester them 50+ times over the course of my life and add to that workload.

    Reply

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